I just started taking Ropinirole ER about two months ago. I had to quit taking rytary due to the side effects. Small doses would cause dyskinesia in my right foot. I never was able to get my right side to loosen up. I was taking a 245 mg rytary every four hours with no help. I was basically a stiff zombie.
The Ropinirole seems to be a better choice for me but I’m still not at a functioning level yet. Got increased to 6mg once a day and looking forward to seeing how it works. Having clarity of thought is another bonus.
So I’m wondering if anyone here has a low tolerance for carbidopa-levodopa like I have experienced and if so how much Ropinirole was the magic number for you? The best thing I have found is it’s a once a day dose. Thanks
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Hello,
I take ropinole 0.5 mg 4 times a day along with 7 c/l pills a day. I had issues with c/l in the beginning and I stopped taking it. My uncle who had Parkinson’s insisted that I should take it and give it some time to have my body adjust. Eventually I was able to deal with the side effects and have been on both medications for 6-7 years now. I am progressing 12 years in and had a stroke which didn’t help so I am now having issues with mobility and stiffness. I talk to my Neurologist this month to see if I need to increase dosage or change medications. I am also switching Neurologists who is more specialized so hopefully I can get some more help. Ropinole has been a life saver for me and it completely stopped my tremors. I do have some off time with it now but my doctor said I could increase the dosage if I wanted. Give it some time to build up in your system and I think you will be glad to take it.
Thank you. I was taking c/l for the past five and half years. I experienced dyskinesia from the start. Taking only three sinamet pills a day. I sadly had to move around a lot since my diagnosis and all my neurologists just kept increasing the dosage and eventually put my on rytary. None of f them would listen to me about the side effects and would just stay the standard course and increase. Finally I had it so bad with involuntary jerking and dyskinesia twisting my up. I took myself off all c/d for two months and showed them what I was really dealing with. So my new Neurologist finally listened and took over and started me on the time release Ropinirole. At this point I’m taking 6mg once a day. Starting to feel a bit better. Things seem to be loosening up. Leg is definitely better. I’m scheduled to increase again in a couple weeks. So far I like what I’m experiencing and only taking pill once daily is nice.
I do experience some off times during the day but I am hopeful that with the magic dose it will help.
Thanks for your input the more I hear about this product the better I feel about taking it. I’m happy with the results. I’m loosing up tremors are slowing down and best of all I am not dizzy and confused anymore.
That’s great that the ropinole is helping with your other symptoms. My Neurologist never mentioned that it helps with anything except with the tremors and the restless legs. I will ask about increasing my maybe it will help me with my knee and leg pain it couldn’t hurt because increasing the c/l hasn’t helped at all. I keep praying that soon we will have a much better treatment that will not have so many side effects.
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Hey there! I currently take 6 mg of Ropinerole 3 times a day. My MDS said that was my maximum dosage. She recently prescribed Rasagaline one time a day in the morning. I was diagnosed in 2020, I have no tremors and not very many complaints except for stiffness and slow movement. Sometimes I wonder if i really have PD… But then something comes up which reminds me I most likely do. I feel like I tolerate my medication very well. And I am putting off C/L until late in the game.
Thank you. After talking c/l for five years with adverse effects. This medication is new to me. I’m still not getting enough relief from the amount of medication I receive per day. I’m still waiting for the perfect dose.
Everything so far has been a better experience. I’m not experiencing as many side affects. The only thing that is causing me concern is the insomnia that I’m experiencing.
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I was diagnosed October 2021 aged 56 and prescribed Ropinirole right from the beginning as apparently it can delay motor symptoms .im now on6mg xl and it works up until 8pm.Having heard the effects of leva dopa I hope to delay this as long as possible
I’m at 6mg at the moment and really haven’t experienced expected relief from my symptoms. I’m still very stiff and have several off times during the day. Insomnia is my biggest concern. The newest symptom I am experiencing is anxiety( body anxiety not mental). As per my increase schedule I am due for another bump but I’m waiting for my next doctor appointment. Getting nervous about taking more. I was told I could take up to 24 mg per day. I don’t want to fall down the same rabbit hole as I did with c/l. For five years all the doctors did was increase c/l and add medication to control side effects from c/l. There has to be a better solution. I’m getting frustrated with the medical community and the way medications are misused or over prescribed.
Beginning to realise no medication regimes are alike!
I also take propranolol as it was initially thought to be an essential tremor-seems to help.
Think all clinicians should be ready to justify their medication decisions.
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I know these are common sense about PD meds but i know they get lost in my day -to-day life. Taking the meds the same time every day really makes a difference in how effective it is. Along with avoiding protein as much as you can when you take your meds. I of course forgot how many minutes you wait.
Hello,
Before I was diagnosed I Experienced severe pain in my legs. And my body was stiff like an ironing board It was extremely hard for me to dress. Take a shower and do normal activities once I started c/l It was a magic pill I got my life back. I’ve only been on it for approximately 90 days. I tolerated very well.