If you read my bio, it’s pretty easy to understand why I have medical trauma. I spent 5 days in the hospital last week. It was by far the most traumatic series of events in my adult life, which is really saying something. Keeping to just PD related mismanagement, I’ll tell you that getting my Parkinson’s meds on time was a fight nearly every dose. I can’t tell you how many people got the lecture from me. They took my meds and locked them in the pharmacy so I couldn’t self administer. The “aware in care” kit did absolutely nothing. They were aware and didn’t care. Because of this, every off time I was a fall risk- every on time I wasn’t. My case was compounded because of how late I was getting my meds.I could go on and on. Unfortunately I didn’t know until it was too late.
Support needed.
2 Likes
I’ve had a similar experience. I had to ask for my C/L every time I was due. Then it would take an hour to get it to me. They were more interested in keeping me on painkillers ( a drug I am very against) injecting straight into my IV. Hopefully this isn’t a bigger problem through out our health care system.
1 Like
It concerns me, as this progresses many of us won’t be able to communicate as clearly or loudly as we do today. How will they treat us then?
1 Like
If you’re able to get in touch with the patient advocate at that hospital, I would highly recommend you call them and let them know the herbal treatment that you received. I am so absolutely sorry that you went through this and I am also one who has experienced medical trauma with doctors and hospitals, over and over for 30+ years. My first one was when my son was born, they almost killed him. Second was when he had brain surgery and so on and so on. I never knew about a patient advocate! I hope this helps. hugs!!
1 Like
Jennifer, this concerns me too!! I am very worried about the future when it comes to the miss management of our needs. I am already having difficulty communicating to people and trying to get my words out correctly. To the point to where my son of 29 years old had a witness his mother of 51 years, the same sentence over and over again to a potential client. Luckily, he saw what was going on and changed the subject and said we had to leave. Lol he save the day right there and kept me from further embarrassing myself. I never explained anything to him. He just picked up on that right away! But one thing I will say is now I have to explain to him what he may see what you experienced happen to me in a medical setting. It’s really sad that we are left to advocate for ourselves, and now our family members and caretakers need to watch out for this as well with us. Hope that makes sense.
1 Like
Hi Jennifer, so sorry to hear that this happened, but unfortunately not surprised due to the absolute train wreck our hospital system is. I worked in hospitals most of my life never saw and aware in care kit till now. Would love to discuss this further at some point but right now just want you to know that this is never OK and you have support during this time of trauma.
3 Likes
While the Aware in Care kit may have been useful 20+ years ago when charts were paper and hung at the foot of the bed, they are totally unusable today. When I went in for back surgery earlier this year, the admitting nurse said something like “This would be great if we used paper charts, but it’s all online now.” I had DBS so didn’t need daily meds, thank goodness.
2 Likes
I’m trying to picture he body with daschound and pit features… It’s. Making me giggle. Please show me if my imagination is right!
1 Like
She’s really much more doxie than pittie, although her DNA test came back half and half. She has the long body, floppy ears, long nose, and expressive eyes of the Dachshund, but just longer legs, and the short brindle haircoat of the pit. She’s squinting in this photo, her eyes are usually much rounder. I think lying in the sunshine is popular with any breed!
2 Likes
October of last year I was hospitalized with severe anemia. My hemoglobin was 5.3. I was in the hospital for 2 weeks, then transferred to a skilled nursing facility for almost 2 months. I have never felt so utterly helpless and enraged in my life. The humiliation was daily. I got out the week before christmas. And my parting gift was covid. So i couldnt spend the holidays with my parents.
The assisted living/ nursing home system is worse than the hospitals. And i got my share of bull at the hospital for two weeks. My meds were never corrected at the nursing facility and i was going through PT and OT on zero meds half the day. And any med that was good for pain relief or anxiety med, like Klonopin you only got half your dose but the paperwork always showed you got all of it.
The medical care system and I have never been on the same page. I have dealt with horrible to straight non-care from medical professonals my entire life. It has either been because I am woman or because of my size. Those are the reasons it took a decade to be diagnosed with PD.
Once the silver tsunami hits medical care and assisted living it will get even worse before it gets better.
2 Likes
She has the alert look of a pittie! Her brindle coloring is very pretty. 
1 Like
That’s terrible that you’re going through all that. Everyone‘a experience is so different. I’ve had good and bad. Never had a med issue, but if you’re being shorted, maybe take a photo before swallowing them?
1 Like
I’m not clear on why taking a picture would be useful. Can you explain further?
Taking a photo of the meds given can back up the assertation that incorrect meds were given.
By the 2nd day i was taking pictures of everything brought to me. I found out you can ask for a printout of my med log my last week there. That is how i found out that the meds were entered to be given in a 24 hour time frame and not from 8am to 11pm like i told them multiple times. I heard it said more than once that she will get them when she gets them. I am in talk therapy now and i can only talk about some of it. There are parts i have never told anyone about that stay.
1 Like
