Aug 24 my husband and I decided to get our RSV for 60+ years older vaccine. It is a brand new vaccine that just came out weeks before. So little is known about it. I had bodyaches and joint pain for the next four days.
August 28 my birthday I started having horrible muscle spasms; each day they were getting worse. The spasms would start from my shoulder to fingertips and my groin down to my toes at the same time.
I called my internist After this was happening for a few days. He wanted me to go to the ER immediately. Went to the ER & it was a freaking nightmare. It took me 4 hours alone to get through triage to get my vitals.
I was admitted into the hospital. By this time the bodyaches were gone, but the muscle spasms were increasing. The staff at the hospital saw how much an agony I was in because those spasms would last for hours.
Then my husband John made a key observation. My spasms are only on my RIGHT SIDE. Duh how did I not notice this? It was because I was in so much pain and I was exhausted. that piece of the puzzle should’ve told us. This was the DBS!
As soon as we realized it was not from the vaccine — this was DBS related . I have the Abbott labs DBS unit.
They contacted my DBS neurologist who programs my stimulator’s that controls my brain! A few hours later the problem was corrected. I’m not sure exactly how & however, I have a DBS appointment mid Sept and will surely find out then. I am so thrilled to report that the spasms from HELL are gone!
36 hours later I feel so much better. My muscles are very sore from all the spasms but that’s manageable.