I find alot of meaning in this video.
I think alot about how a PD diagnosis will impact the quality and quantity of years I have left to accomplish my goals. I’m only 44. There is alot I still want to do and achieve.
How do you look at life differently since your diagnosis? Do you feel a sense of urgency to get things done?
Thanks,
Jonathan
This is a really good video! Encourage everyone to watch it!
When I first got diagnosed five years ago, my first thought was that I had to start knocking off items from my bucket list. My view has since changed about that partly because I never really had a bucket list.
I’m not someone who dreams of doing specific things or going to specific places. Instead, I take pleasure in providing for my family, making them happy, and spending as much time with them as possible.
So that’s what I’m doing. My goal is to make memories with them, while I can still function somewhat normally.
When it comes to my own interests, I still do the things I love, just not as often and not as well. For instance, I like to tinker with computers and software. Fortunately, that’s what I do for work although it is getting more difficult these days and I’m finding that I’m having to take breaks due to off times. I also enjoy playing guitar, but I don’t do that as much these days.
I guess I don’t necessarily feel a sense of urgency with things, it’s more so a sense of gratitude and appreciation for what I have in my life, including my body’s abilities.
Aww, how lovely. Yes I definately feel like I have less time to waste so me and my husband actually are taking a very carpe diem approach to life now. My SIL died of cancer the week before I got diagnosed and the last thing she said to me was this “life is full of surprises, life each day like it’s your last”, I never had a big passion either, I have lots of things I enjoy, like travel, my family, new adventures making my kids laugh, music, all the things. But now I do have passion about PD advocacy.
I am taking the cape diem approach also. I still at 7 yrs of Parkinson’s and now age 63 I have alot of life to live and lot to give with my PD advocacy also. I found there is no representation
of any PD groups here in SW Minnesota so I am stepping up to bring awareness
Yeah it’s the same here in West Texas. I do go to an in person support group but it’s mostly retirees. And it’s at 3:00 on Wednesday so not very likely to attract the working demographic. I can’t wait to get started I want to do a lot of outreach to PwP but also healthcare providers
I go to virtual group in Second Life they have an area for Parkinson’s that meet every week on Thursday’s.
What’s second life?