Which is worse for u? Motor symptoms or non- motor symptoms? For me it’s the non-motor symptoms. I’m constantly struggling with dizziness lightheadedness and brain fog! Not to mention bladder issues, sleepiness, depression, anxiety, and whatever else the day decides to bring!
1 Like
Lately for me it is motor symptoms. I’ve been having an extraordinary amount of off time which leads to slowness, weakness, stiffness and rigidity. My balance or lack there of has progressively gotten worse. I haven’t fallen yet but I fear that I will soon. Thus far I have been running into walls, banging tables and spilling drinks. I’m looking forward to DBS!
1 Like
Non-motor symptoms 100%. It’s the iceberg effect.
1 Like
I spent Friday in the ER. I thought it was appendix or kidney stones but nope. They couldn’t find anything. My best guess is that symptoms were related to Parkinson’s somehow. My neurologist added a muscle relaxer a few weeks ago so wondering if it was a side effect. I experienced a hallucination shortly after taking it once which I experienced one other time which now thinking back makes me wonder if it was another muscle relaxer I tried. All I know is that it is hard to know if you should go to ER or not. If I didn’t go what if it was my appendix but going and finding nothing causes large expense and results and getting a letter from insurance saying that you should have waited until office hours to go to urgent care if you can’t in to see general Dr. So my answer anything related to Parkinson’s all sucks.
2 Likes
I am sorry to hear that you went through this Dawn. if you don’t mind me, asking, what was the hallucination that you experienced?
I am not sure if it was an hallucination or a half wake half sleep dream. My watch that I wear to track to sleep didn’t recognize that I was asleep. But it followed a dream pattern where as I would think that an hallucination wouldn’t. What ever it was it didn’t make sense. People were getting sucked up in the ground like end of world times and I panicked and awoke from a it realizing it was a dream. I turned off the tv and put remote on the night stand. Weird thing was that was the dream I never woke up to turn the tv off or put remote on night stand because tv and remote was off before I went to bed. Weird huh!
1 Like
Both. The non-motor aspect plays with my mind. I used to be able to multitask and manage extremely large and complex projects and now although I can still handle large/complex projects I need to do it one at a time. The real problems happen when my tremor gets so bad I can’t type or my foot dystonia is so painful I can’t sleep,
1 Like
Dawn, thank you for being brave and vulnerable for sharing your experience. Think you’re right there are some things you just don’t want to leave to chance. Hope things get better soon.
1 Like
Hi everyone! I am a student in year 11 from the UK who is going into the GCSE exams this upcoming year, and one of the subjects I am taking is Design and Technology. This year my prompt is ‘Eating away from home’ and I have decided to delve further into Parkinsons and the difficulty of drinking with tremors. My design idea so far is a cup which includes a mechanism only allowing it to stay upright so that its contents will not spill even when tremors are severe. I was wondering if anyone who relates to this problem and is okay with answering a few questions for an interview could respond to this? Thanks, Emma. M